Focus on Early Diagnosis, Family Involvement, and Long-Term Management
Chandigarh, May 17 – The Post Graduate Institute of Medical Education and Research (PGIMER) observed Celiac Disease Day on Friday with a comprehensive awareness and education programme aimed at early diagnosis, dietary management, and psycho-social support for affected children.Organised by the Division of Paediatric Gastroenterology and Hepatology, the event brought together healthcare professionals, patients, and families to discuss the evolving landscape of celiac disease management in India.
PGIMER’s Pioneering Role Since the 1980s
Speaking at the event, Professor Sadhna Lal, head of the division, highlighted PGIMER’s leadership in tackling the disease. “PGIMER has been at the forefront of diagnosing and managing celiac disease in India since the 1980s. Our dedicated clinic has treated nearly 18,000 patients to date, making it one of the largest centres globally,” she said.She noted that the disease is particularly common in north-western states such as Punjab, Haryana, Himachal Pradesh, Uttarakhand, and Rajasthan, due to genetic susceptibility and wheat-based diets.
Shifting Clinical Profile Challenges Diagnosis
Professor Lal pointed out that many cases go undiagnosed because of mild or nonspecific symptoms. “Celiac disease is often likened to an iceberg — visible symptoms represent only a small part of the total burden,” she said.She also noted a shift in the disease's presentation. “Earlier, most cases involved growth failure. Now, nearly 50 percent of children have normal growth, making diagnosis more challenging. However, iron deficiency anaemia remains the most common feature.”
Importance of Early Detection and Family Support
Lal stressed the importance of early diagnosis in childhood for optimal treatment outcomes. “Diagnosis becomes more complicated in adults, and many remain undetected,” she said.Sharing a case study, Lal recounted the story of a young girl who went into liver failure due to dietary non-compliance caused by lack of awareness. Diagnosed at PGIMER eight years ago, the patient is now recovering with medication, though she was recently advised to undergo liver transplantation.
“Strict dietary compliance requires full family cooperation,” Lal emphasised. “Parental understanding and commitment are critical to sustained treatment adherence.”
Practical Management and Emotional Support
As part of the programme, participants engaged in interactive sessions including dietary counselling, gluten-free recipe demonstrations, and a Q&A forum with specialists. Tips were shared on home-based gluten-free diets, maintaining regular meal times, and ensuring children do not skip breakfast.Lal urged parents to involve children in managing their condition actively. “Empowering the child and family with knowledge is key to long-term success,” she concluded.
The event reinforced PGIMER's continued commitment to raising awareness, promoting early detection, and delivering evidence-based care for children living with celiac disease.